Joslyn will be 9 weeks tomorrow!!! (6-13-08)
She has been having more problems with her reflux. We think she has Silent Reflux, which means she is not spitting the acid up and it is going back down.... causing twice the harm. (what she has been doing since she was rushed to Scottish Rite) She has also been gasping for air when this happens. It is a horrible sound.. but luckily the Apnea monitor has not been going off, so she is not long between breaths. We made an appointment with a GI specialist for June 24. We are hoping to get a better idea on how to help her, and get a special sleep wedge that will keep her at a 30 degree angle when she sleeps. That is suppose to help her reflux.
We have taken her off of the Reglan medicine. It has way too many bad side effects which she has shown some of them. Luckily, she was only showing increased crying/screaming fits that we could not stop. That is one of the "best" reactions if you are going to have reactions from that medicine. We are just too scared of what that medicine can do to adults.... let alone a 2 month old miracle baby girl. However she is still on Zantac.
Since we have taken her off the Reglan, she has not had nearly the amount of uncontrollable screaming fits. For 2 weeks she would get so upset and there was nothing Stephen or I could do, which was heart breaking for us. We now know it was one of the side effects from the Reglan.
On a happy note.... she has found her fingers and hands! She has figured out that she can wave her hands in front of her face.... and she does it all the time!!!! It is so funny! It looks like she is trying to punch the air!
Jacky
Thursday, June 12, 2008
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