Well, what a major change we have gone through! At 3 days old Joslyn was rushed to Children's Hospital at Scottish Rite in Atlanta. While I was nursing her she turned blue in the face and lips, then when i sat her up she began to return to normal. We took her to the ER and they rushed us to Scottish Rite. While waiting for the ambulance I attempted to feed her again and she turned blue again.
They ran a massive amount of tests on her: Spinal Tap, blood tests, EEG, Upper GI, Heart sonograms, you name it they ran it! We had to watch our 3 day old go through these horrible tests, and we could not make it stop. We are at Scottish Rite for 3 days while they monitored her. She had another episode there as well, while they were giving her Zantac. At that time she aspirated the medicine into her lungs.
She has been diagnosed with a moderate case of reflux and apnea. She does not spit up when the reflux acts up, she does not know what to do with it so she tries to breath it back in which causes her at aspirate and brings on the apnea.
She is on a Apnea monitor 24 hours a day, which will alarm us when she stops breathing. It is hard to see more wires coming out of our miracle, but while at Scottish Rite she had a dozen wires coming out of her. So we feel two wires is a lot better.
She is doing better now, no episodes since. We are feeding her while elevating her and giving her Zantac. We know that every other test came back perfect, so she is wonderfully healthy other than that.
It was a horrible experience. We got to Scottish Rite ER at 9:00pm and did not get into a room until 4:00 am. Our days did not end as we were awake making sure our little miracle was breathing every second of the day.
We thought that she was being taken away from us, after losing 2 angel babies we could not lose her. I am happy to say that she is not going anywhere unless we go with her. She is the strongest person I know. She did not fight any test, she did not complain one bit. She took everything like a trooper.
Joslyn is now 10 days old, and looking wonderful! She weighed in at 7 lbs 9.5 oz on Friday, April 18. After dropping to 6 lbs 10 oz while at Scottish Rite getting back up to her birth weight (and then some) was such a wonderful moment for my husband and I. Something she had accomplished! Our little miracle..... is a little miracle!
Jacky
Monday, April 21, 2008
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